Well, crap. Today is Monday and I saw my oncologist this morning and had blood work. After that I went to physical therapy. I flunked my blood work. They looked at 24 things and I only passed 11 of them. I flunked 13. Thank goodness I’ve already had my last infusion of the red devil, because they wouldn’t have let me have another one. I will start my new drug a week from tomorrow end it will take four hours. That seems like an awfully long time, but it is what it is. I have infections under both of my arms and they are treating that. I officially have neutropenia, which means I am not allowed to have fresh fruit or vegetables until I can get my counts up. I was told there’s too big of a chance to get an infection from bacteria on them. I came within 3/10 of a point of having to have a transfusion today. that was a close call. I was released from physical therapy, at least. I will do my home exercises from this point on and wear my arm sleeve and glove. My white blood cell and red blood cell counts are both too low. I am anemic, so it’s no wonder I’ve been so tired lately. I do feel better today than yesterday, though.
6/16/25 I’m back. By a show of hands, everyone that loves my charts, and patient portals, etc. raise those hands high! Hmmmm, I see none going up. I have sent messages on my patient portal on several occasions and heard nothing back. So, I call the office and leave a message, because you never get a real person the first time. No one calls me back. I think I might drive to the office tomorrow. ….. sigh. On a good note, my ctDNA test came back negative. Hooray! And I go back to MD Anderson in Houston in two months. I have an endoscopy in three weeks. I see my rheumatologist in two days. I need to get my dermatologist to take a look at my head. It’s been five weeks since she cut that open and it still has not healed. It’s still scabby and bloody. So, I still cannot get in the pool. And I have to stay out of the sun. It looks pretty icky on the top of my head, I’m sorry to say. David and I celebrated my good news by going to Shreveport this past weekend. We had a good time. Th...
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