Later tonight -

It's 11 p.m. now.  I have more spots.  I'm having my typical chemo night difficulties.  Not feeling so hot, but that's normal for this night.  I'll keep an eye on the spots and hopefully they won't continue to spread.  I have a feeling this is gonna be a long night.  I'm supposed to cut my steroids in 1/2 tomorrow.  If the high dose isn't keeping them away, I'm having trouble wrapping my head around how 1/2 dose is gonna help much.  Maybe I should do the Hokey-Pokey again.....?


Comments

Post a Comment

Popular posts from this blog

1/10/25 It's Friday.  2025.  Holy cow.  When I was a kid, I thought in 2025 we'd be living in space or something and robots would be our maids.  Like Rosy, on the Jetsons.  This is gonna be a nutshell post: I had several doctor appoints since I last wrote. Had another sleep study for something my cardiologist ordered.  Long word, can't remember it.  I bought a new car.  Christmas was simply delightful with all the kids home.  ct/DNA test came back negative (woo-hoo!).  Went to Houston to MD Anderson this week for an MRI and my surgeon will call me this afternoon with the results.  However, I read in MyChart last night that my tumor had  grown only a tiny amount in the past 2 years, so I'm stopping the MRIs because it's probably benign. (woo-hoo!)  I'm still doing physical therapy twice a week in the pool to try and help my back.  We went to a New Year's Eve party and I did something a friend told me about.  I tol...
Read more
  6/16/25 I’m back. By a show of hands, everyone that loves my charts, and patient portals, etc. raise those hands high! Hmmmm, I see none going up. I have sent messages on my patient portal on several occasions and heard nothing back. So, I call the office and leave a message, because you never get a real person the first time. No one calls me back. I think I might drive to the office tomorrow. ….. sigh. On a good note, my ctDNA test came back negative. Hooray! And I go back to MD Anderson in Houston in two months. I have an endoscopy in three weeks. I see my rheumatologist in two days. I need to get my dermatologist to take a look at my head. It’s been five weeks since she cut that open and it still has not healed. It’s still scabby and bloody. So, I still cannot get in the pool. And I have to stay out of the sun. It looks pretty icky on the top of my head, I’m sorry to say.  David and I celebrated my good news by going to Shreveport this past weekend. We had a good time. Th...
Read more
  12/16/24 It's Monday.  Today is my daughter Stacy's birthday.   I was supposed to get my glasses last Monday, then Wednesday, then Thursday - they finally came in.  I was chastised for calling in to get the status when I'd signed up for text messaging, however, I never got a text message.  Ever.  They lied to me 3 times about why they were late.  About why it took 25 friggin' days to get them, etc.  They think nothing about lying to customers at the optical department of Sam's Club.  I dislike them so much that I would be willing to unplug them from life support just so I could charge my cell phone. So, now I wea bi-focals.  I have not gotten used to them yet.  My close-up vision is much better, but my distance vision...... not so much.  David says I just need to get used to them.  Of course, this advice is coming from a man that sat down to eat breakfast and thought his toast was too cold.  Any reasonable pers...
Read more