I think it’s Thursday. I am still talking to post this, so ignore all the stupid errors. David brought me home yesterday. I was released at 2:15. We drove straight to radiation from the hospital and got there at 3:15. The radiation oncologist reconfigured my target sites to move away from my esophagus. David brought me home after that. Climbing up four steps to get into the RV was pretty tricky, but David pulled me up. I brushed my teeth and took a shower and then went to take a nap. I slept for two hours. When I woke up, David help me go through all of the medicine they gave me. He made a chart and I think we have everything straight. I had seven prescriptions that we brought home. 

Throat is still very sore, but I can swallow liquid now if I do it very slowly and in small amounts. I don’t want to drink and I’m not hungry, so it’s going to be very difficult to get down enough fluid. Dehydration and will send me back to the hospital, but it’s very hard. I am not going to do a feeding tube. I refused. If I had one put in, it would last for many weeks before it would be removed. They are awful. 

That idiot night nurse was fired. I told one of the doctors about her and she promised I would not have her the last night in the hospital. It turns out, I’m not the only one that she treated badly, so I’m glad I spoke up. She did so many things that I didn’t even mention in my blog. She has no business being a nurse.

I ate practically nothing for six days, and I gained weight while in the hospital. That is so terribly unfair. The nurse said it was because they gave me so much fluid in my IV. Still not fair! I slept better last night here in the RV than in the hospital. I am going to continue radiation every day. They just added a few days on near the end of September. They said I was rare. They only see maybe three cases a year with burned esophagus. I told him I was just that special. a CAT scan of my chest showed I have two new nodules growing in my lungs. They were not there three weeks ago, so they said to talk to my oncologist about that.

I am wearing a Fentanyl patch on my arm for pain. They scrapped the morphine idea. I take it off and change it every three days. I did not know what fentanyl was, but have since learned. It seems like everyone knew but me. David thinks it’s cool because I got a nasal spray called Norcam. He says it’s what cops keep in their  car for overdose victims. I showed him how to use it last night in case I have a reaction. I also have pain pills for breakthrough pain. They gave me stuff that coats my throat, too. I take that before I want to eat or drink, and I need it at least four times a day. If anyone thought I didn’t have enough medicine for a cancer patient, they should see my counter now!

It’s good to be home 

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